Ehlers Danlos Syndrome | A Note Of Hope

Ellie Howe

Sep 27, 202410 min read

Inspiring Interview: Fighting to Be Believed with Myalgic Encephalomyelitis (M.E./CFS), Ehlers-Danlos Syndrome (EDS), and Postural Orthostatic Tachycardia Syndrome (POTS).

Read one of our inspiring interviewees journey of living with Myalgic Encephalomyelitis (M.E./CFS), EDS, and POTS.

Ellie Howe

May 24, 20247 min read

Discover Shannon's inspiring journey as she navigates motherhood while living with Ehlers-Danlos Syndrome and other chronic illnesses.

Ellie Howe

Apr 12, 20248 min read

At 15 years old. Harriet has overcome medical gaslighting, and hopes sharing her story will offer solace to others in similar situations.

Ellie Howe

Oct 20, 20232 min read

Ava lives with several chronic illnesses, including dysautonomia and EDS, and shares with us the impact they've had on her life.

Ellie Howe

Oct 6, 20234 min read

Rae opens up about living with FND, and several other chronic health conditions, and the impact on her daily life.

Ellie Howe

Mar 3, 20236 min read

Our first inspiring Interview. Meet Rosie - our Chief Social Media Ambassador - who explains what its like to live with HEDS & more.

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Charlotte

"Ellie is doing such incredible work, making people feel listened to when sometimes all they've been is ignored.

Keep going Ellie! You're an inspiration."

Positive feedback about the project from our inspiring interviewees and community